Monday, March 23, 2009
The Bald Identity
Day + 10 Health Score 66
Today was definitely better than yesterday. Let me explain, "No there is no time, let me sum up"
My kidney function is improving and they are working overtime
I woke up hungry for the 1st time in a week, I attacked the can of Strawberry Ensure that had been sitting on my table for 3 days.
I felt strong enough to get out of bed on my own and proceeded to take the first of two long, hot showers. As I washed my face, I noticed hair on my washcloth and wondered how it got there, immediately realizing that it was coming from my head. Then returning to bed I discovered the telltale 'pelo on the pillow' It was time for action. I was able to schedule an emergency hair appointment with my stylist, Evan. And as we all know, even with a menacing asteroid hurtling toward the earth; you never cancel a hair appointment!
My physical therapist came by and had me walk 12 laps around my room and then 15 minutes on the bicycle.
By then, my sister, Leslie, had returned with a pint of Ben and Jerrys Phish Food; my favorite ice cream. It was heavenly.
How could I go from my lowest point ever to such improvement in one day? Prayers are answered in many ways. My Dr, Dr Arai, was very concerned with some of my complications as atypical. She had read a paper written by My Dr. Dr Lacey at the Mayo Clinic describing these unusual symptoms in amyloidosis patients. She called Dr Lacey and they had found that steroids, specifically Solumedrol (one of my least favorite drugs) had shown improvement in both the lung and gut bleeding complications. One dose was all it took. What value there is in the combined wisdom of so many people.
Since my lungs had shown so much improvement on my CT today, the pulmonologists have cancelled the bronchoscopy scheduled for tomorrow. All that's left to wait for is for my new bone marrow to wake up and start making white cells...........You will never believe what just happened I stopped writing for a moment to speak to my doctors and I spoke with Sam and Michelle, as they called to see how I was doing. The nurse then came in and casually said I just got your labs back and they've improved. I was not prepared for what she said next, "Your white count is 0.4" I was stunned. That means I am engrafted. The stem cell transplant was a success. You can't imagine my relief. I felt like I should add 10 points to my health score and call it '76'. Now all that is left is to continue getting healthy. Why am I so blest? Why am I so loved? This is a gift that I can never repay.
Thank you to you all from the bottom of my strong, shared heart.