Wednesday, July 30, 2008

We wait yet again

We've been home for 27 hours now.  I've unpacked, done laundry, found a dress for Samuel's wedding, found dresses for the girls to wear to Sam's wedding, relaxed in the hot tub and best of all, ate Thai food for dinner with good friends, my mom and Rebecca.  Some of those items Kevin joined me in - for some reason he didn't join me in the shopping!  Can't figure out why.  While we are home, I have felt the urgency to do as much as I can to prepare for the upcoming weddings.   Rebecca is looking at invitations, flowers, and cake.  The other BIG things are already done.  There are still a few technical details to complete for Samuel & Michelle's wedding.  All the other major details were done by Michelle and her family.  

We have spent the last 2 months living in the world of 'if this - then that' and we are still here.  We've spent a lot of time waiting for the next results or the next plan.  Now we wait again for Stanford's decision and then maybe their next plan.  And then we wait for a heart.  Someone out there has made the decision to be a donor - and that same someone will be a match for Kevin.  That is an immense thought.  We spoke to the Social Worker at Mayo about this very subject.  The realization that someone needed to die in order to give life to Kevin seemed tragic.  She reminded us that the donor and their family, in their sorrow, feel at peace in returning life to another.  Another great blessing.
Be a donor and donate blood.


Fries Family said...

Hello! This is Shalee, Wendy Ormsby's sister. I don't know how well you remember me but I think I did cut a few of your family members hair.

Anyway, Wendy called me today and alerted me to the experiences you and your family are having. I remember a few patients in the office I worked in that had Amyloidosis, it was interesting/upsetting to talk with them. I will definately keep you in my prayers.

It's hard to believe that it's been nine years since I lived with Wendy and Alan in CT. I wouldn't recognize your little ones, who are not little anymore.

Nine years has given me a great husband and a beautiful little girl. (

I was excited to hear of all the weddings occuring in your family too. How great!

I look forward to hearing about the rest your journey and I will keep in touch.

diana said...

Hi Barbie, Kevin & Family! We're visiting Ken & Charlotte and just learned the news. We'll definitely keep you in our prayers. I'm so happy to know you have a blog where we can get updates.
Seems like a lot has happened in the past 5 years since we both left CT for CA. We have a 3 month old little boy(Jake) and a blog we keep up on too.
All the best, we'll check back often.
love, diana & dan O.

Anonymous said...

Dear Kevin,
Thanks so much for coming by the hospital to let us know what was going on with your life. I'm grateful to have been able to see you before you continue on the long journey ahead, especially as you had such a short time at home. That is wonderful news about being on the transplant list at Stanford. What a blessing to be so much closer to home.
We were so touched in 23H to have read your and Barbie's postings on your blog. The one about how you got to where you are today and you doing surgery right after you found out your diagnosis. It never fails to amaze me how God puts people in our lives at precisely the right time, such grace... so we always know He is there walking with us, lest we temporarily forget. I will continue to read your blog and have you, Barbie and family in my prayers. God bless you all.
Love, Jennifer

Anonymous said...

Hi Kevin and Barbie:
The Ford family in North Salt Lake, Utah want to wish you the best as you prepare for your surgery. All of the Anderson family here in Utah are all very concerned about you and your family. And you are in our prayers! What a great example you are Kevin and Barbie! I have gained a lot of wisdom by reading your story. Thank you so much for sharing. We love you!

Patty and Ron Ford and family