I continue to recover well and feel great. Food now tastes like it is supposed to and I can't get enough, but I still haven't put any weight back. (the healing process chews up a lot of calories as I rebuild the muscle mass that I have lost.) But I don't want to fall back on my 'old' bad eating habits, so I am loading up on fresh fruits and vegetables. (mushrooms and green peppers on my pizza, just kidding).
Now my focus, now, is turning to the treatment of the amyloidosis. That is what got me here in the first place. To date, I have received no treatment for it because the heart took precedence.
I spoke today with Dr Witteles about a referral to Stanford to discuss my options. Dr Witteles is a Transplant Cardiologist at Stanford and was involved in the decision to get me on the transplant list there. He has a special interest in amyloidosis, as they are starting a program to treat amyloidosis here at Stanford. I am their first transplant in decades. (AL Amyloidosis, Leo had a transplant 4 years ago for AA Amyloidosis).
Dr Witteles set up an appointment for me to see Dr Stanley L. Schrier, Professor (Emeritus) in the Hematology/Oncology department at Stanford who is the expert there on the treatment of amyloidosis. In that visit we will discuss the timing and approach to the treatment plan. It could be to start on chemotherapy soon (when I am sufficiently recovered from the transplant) to control the amylodosis with the idea then to do the stem-cell transplant at a later date; or to use only chemotherapy, and if that reduces my serum kappa free light chains (the full name of those nasty proteins 'gumming' up my system) to a normal level, that may be all that I need. That would be nice.
I am so fortunate to have so many great doctors helping me to get better. I trust them with my life.
Life is good.