So now we are in recovery mode with the anxiety of moving forward to treat the amyloidosis. We did get an appointment with hematology at Stanford. Again, we are grateful for the fast moving process to treat him. I need him here for as long as possible; he calms my soul and comforts my worries.
I have been thinking about the adjustment we will have going home. We have been by each other's side during this entire process with the exception of two receptions. When we go home and back to a routine, we won't be together all day. I suppose we will adjust. I let him start driving yesterday; it was strange to hand him over the keys. It sort of felt like I was letting go of some of my freedom, but having been a passenger for 2 months, Kevin now has more patience for passengers and I for the driver. I have left him at the hospital or the hotel room to run some errands, but he has never left me. The moment we get home and he leaves to run an errand, I will feel the loss of his companionship. This may sound very strange to many of you, but my sensitivity level has heightened. I've taken care of him for so long now, I will worry when he is not with me, not a lot, but to some small degree. As he gains more independence, I lose a little of him. But to leave on a happy note, the fact that I have been able to be with him is a blessing and has made me love him more.