It has been two weeks since I have started the chemotherapy for the Amyloidodsis. The Revlimid, which I take daily, does seem to have noticeable side effects. The high dose steroid does cause the usual insomnia and weird taste in food, but it also gives me intermittent hiccups. Of note, however, my heart biopsy on Tuesday did show moderate rejection (2R, on a scale of 0 through 3R)A large percentage of patients will have this in the 1st six months. This is also treated with high dose steroids, so in addition to the Decadron I take weekly for the Amyloidosis, I am now on 100 mg of Prednisone daily, but with a rapid taper. They also stopped my Cyclosporine because even a supra-therapeutic dose was clearly not protecting me. I am now on Prograf, a different anti-rejection drug. I also got a call this evening that my Cellcept levels (another anti-rejection drug) were too high, so as of this evening, I drop the dose of that drug as well. There have been lots of changes this week.
I did have symptoms associated with the rejection, low blood pressure, a fast heart rate and severe weakness, often when I would stand up I would get very light-headed. That has improved in the last two days since I have been on the high-dose steroids.
More importantly, I have recently discovered a really good pizza place here in Rocklin, Gaetano's New York Style Pizza. I went there once back in March of this year, but later that night I had a mini-stroke and couldn't see out of the right side of my visual fields, I ended up in the hospital for two days. Since the heart transplant, and now on an aspirin a day, I felt it was safe to return. It is actually fairly authentic New york style pizza and probably better than a lot of pizza you actually get in Manhattan. You have to enjoy the simple pleasures, whatever the risk.
We are so excited about the upcoming wedding next week. Rebecca and Corey are so in love. It will be a wonderful day.