Sometimes health updates, albeit not very absorbing reading, can be helpful to some who just might experience the same outcome from a specific treatment. I imagine the number of people in the world that have primary amyloidosis, then a heart transplant, then a bone marrow transplant and then Revlimid are very few. However, that is the major impetus for me to write. Where else can they find this information?
One of the side effects of Revlimid is that it can decrease your white blood cell count and your platelets. Paradoxically, it actually raises my red cell count. My white cell count on Monday was 0.8 K or 800 cells; that is really low (Normal 3.4 K to 11.8K) My percentage neutrophils dropped to 49% so my total neutrophil count is now 400. During my bone marrow transplant they wouldn't let me leave my room even with a mask until I was above 500. I went to work the last two days. I did, however, every once in a while where a paper mask and I washed my hands frequently. Even before this drop I was quite concerned with swine flu. I still am. Ironically, concurrently with this severe immunosuppression I caught a cold. My oncologist, Dr Sardar added Zithromax, a potent antibiotic, to my antiviral medications. I am well covered.
Last week in San Diego, if I were to have given myself a health score I would have been 94 on Tuesday morning (even with a broken rib) and then dropped to 62 for 45 minute on Tuesday afternoon. By Wednesday because of steroids and being at Disneyland on my birthday, I was back up to 91. I haven't been this high in two years. It may seem like a roller-coaster ride and it was; Space Mountain, Splash Mountain, Thunder Mountain, California Screamin' and Indiana Jones. I had my ups and downs and loved every one of them.