It has been almost three weeks now that I have been off dexamethasone (Decadron-The Transformer) and I feel wonderful. If I had to give a health score, I would be between 91 and 94. Yesterday I was in the operating room in Folsom and did 9 cases; seven of them were shock wave lithotripsy therapy on shoulders with calcified tendinitis. Two days ago Barbie told me that she feels like I am going to live longer than 5 years, much longer. I agreed.
In one way, I am a man with a plan; but without knowing exactly how I am going to get there. Going off Decadron may have a risk of allowing the amyloidosis to progress, however, an occasional vacation to 'healthland' feels really nice. It has been a while since I actually feel better than I look. (Given my looks, that's a real improvement)
I did check my light chains today to see if they increased off therapy and I will go from there. Until then, I will enjoy my respite.
That is good news! I have a dear friend that is only 45. He just found out he probably has another year. Really rare case of brain cancer. The world is not ready for smart, interesting men like you to leave so young!
Such good news
glad to hear it
Kevin, You continue to be an inspiration. Rich and I are headed home after fun trip to east coast. Our 1st trip since Rich's accident. While we haven't posted on your blog lately, we have been following your adventures. Thank you for taking the time to post. Elle
We're so happy for you!
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