It has been almost three weeks now that I have been off dexamethasone (Decadron-The Transformer) and I feel wonderful. If I had to give a health score, I would be between 91 and 94. Yesterday I was in the operating room in Folsom and did 9 cases; seven of them were shock wave lithotripsy therapy on shoulders with calcified tendinitis. Two days ago Barbie told me that she feels like I am going to live longer than 5 years, much longer. I agreed.
In one way, I am a man with a plan; but without knowing exactly how I am going to get there. Going off Decadron may have a risk of allowing the amyloidosis to progress, however, an occasional vacation to 'healthland' feels really nice. It has been a while since I actually feel better than I look. (Given my looks, that's a real improvement)
I did check my light chains today to see if they increased off therapy and I will go from there. Until then, I will enjoy my respite.