<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/'><id>tag:blogger.com,1999:blog-5123456984059720316.post6646291372309377456..comments</id><updated>2009-09-16T19:18:50.960-07:00</updated><category term='neuropathy'/><category term='dysphagia'/><category term='Heart Transplant'/><category term='Amyloidosis'/><category term='symptoms'/><category term='hoarseness'/><category term='Bone Marrrow Transplant Amyloidosis'/><category term='Decadron mood change amyloidosis'/><category term='difficulty swallowing'/><category term='death'/><category term='Coldplay'/><category term='Amyloidosis NCTN Kaiser'/><category term='Multiple Myeloma'/><category term='labs Mayo'/><category term='Gertz Amyloidosis Guided Imagery'/><category term='rejection'/><category term='Web 2.0'/><category term='blog'/><category term='kappa light chains'/><category term='ejection fraction'/><category term='Stanford'/><category term='organ donor'/><category term='cassiopeia'/><category term='lucky'/><category term='CTDN'/><category term='address'/><category term='Stem Cell Transplant'/><category term='Revlimid'/><category term='life plan'/><category term='Shelly Garone MD'/><category term='palliative care'/><category term='Mayo'/><category term='Rochester'/><category term='cardiac index'/><category term='Velcade'/><category term='restrictive cardiomyopathy'/><category term='Alison Krauss'/><title type='text'>Comments on Kevin and Barbie -- Our Journey of Hope: 9-9-9</title><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://www.kevinandbarbie.com/feeds/6646291372309377456/comments/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html'/><author><name>Kevin Anderson</name><uri>http://www.blogger.com/profile/04634011893927790997</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='24' src='http://4.bp.blogspot.com/_pTTlz7uyVHo/SZ45CE_7wRI/AAAAAAAAAGo/3YM3E4cicwk/S220/IMG_0086.JPG'/></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>6</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>25</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-5868767396166446411</id><published>2009-09-16T16:59:15.909-07:00</published><updated>2009-09-16T16:59:15.909-07:00</updated><title type='text'>I love 9s, too.  They are my favorite &amp;#39;trick&amp;#...</title><content type='html'>I love 9s, too.  They are my favorite &amp;#39;trick&amp;#39; to teach elementary children.  It helps them see other patterns as well.&lt;br /&gt;It&amp;#39;s been a week since your last blog.  No news is good news?&lt;br /&gt;love, Aunt Renie</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default/5868767396166446411'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default/5868767396166446411'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html?showComment=1253145555909#c5868767396166446411' title=''/><author><name>Aunt Renie</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-6646291372309377456' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/6646291372309377456' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1656785781'/></entry><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-6707376128441394646</id><published>2009-09-11T01:27:27.636-07:00</published><updated>2009-09-11T01:27:27.636-07:00</updated><title type='text'>Kevin

Thanks for the info on  amyloidosis I know ...</title><content type='html'>Kevin&lt;br /&gt;&lt;br /&gt;Thanks for the info on  amyloidosis I know little about this but have been resurching every chance I get. My Freind, coworker and who i went to school with has this. He is 39 and had his gaulblader removed about 8 weeks ago and the doctor noticed large liver and took byopsy. last week he was at UAB Birmingham Al and verry week they sent him home to take 30 tables a day starting last Friday around over the weekend his kidneys shut down and went into cardiak arest and was rushed back to UAB Birmingham Al. He has Been on the breathing machine since. Thursday 9/10 was the best day this week his brother said. Todd was alert and writting notes. we just all hope and pray they will find out what to do for him. Thanks again for your info and hope you have a good day today.&lt;br /&gt;Tony Thomaston&lt;br /&gt;tonyt@kelleyfoods.com</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default/6707376128441394646'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default/6707376128441394646'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html?showComment=1252657647636#c6707376128441394646' title=''/><author><name>Anonymous</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-6646291372309377456' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/6646291372309377456' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-851568679'/></entry><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-5633305550176202168</id><published>2009-09-10T10:53:38.522-07:00</published><updated>2009-09-10T10:53:38.522-07:00</updated><title type='text'>Wow! That is hard news to swallow! Hang in there K...</title><content type='html'>Wow! That is hard news to swallow! Hang in there Kevin! We love you! &lt;br /&gt;Rachelle</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default/5633305550176202168'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default/5633305550176202168'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html?showComment=1252605218522#c5633305550176202168' title=''/><author><name>Anonymous</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-6646291372309377456' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/6646291372309377456' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1975709607'/></entry><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-3148817362468717478</id><published>2009-09-10T10:34:09.644-07:00</published><updated>2009-09-10T10:34:09.644-07:00</updated><title type='text'>&amp;quot;homeostasis (my word for the weak)&amp;quot;?  A...</title><content type='html'>&amp;quot;homeostasis (my word for the weak)&amp;quot;?  Au contrair - you are anything but weak!&lt;br /&gt;Re new drugs, new doses, frequent tests .... ever feel like a guinea pig?&lt;br /&gt;We had quite a scare/false alarm over the &amp;#39;weakend&amp;#39; - turned out the Lambda Light Chain tests were highly elevated for all 9 of Dr. Azar&amp;#39;s patients this month.... She&amp;#39;s decided it&amp;#39;s the test, not the cancer that is behaving badly.  &lt;br /&gt;We are reminded that luck is on a gradient, and we are blessed and thankful for every bit of ours.&lt;br /&gt;Best wishes &amp;amp; many prayers that the new cocktail combo works.&lt;br /&gt;P.S. have you considered working nights when on dex?</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default/3148817362468717478'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default/3148817362468717478'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html?showComment=1252604049644#c3148817362468717478' title=''/><author><name>Aunt Renie</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-6646291372309377456' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/6646291372309377456' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-135030130'/></entry><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-2933340687027779978</id><published>2009-09-10T06:59:53.604-07:00</published><updated>2009-09-10T06:59:53.604-07:00</updated><title type='text'>Hi Kevin, I&amp;#39;m with you too!  Up at two and bac...</title><content type='html'>Hi Kevin, I&amp;#39;m with you too!  Up at two and back to sleep at four.  Feel tired all day.  Decadron does it to me.  Today I&amp;#39;m crashing and feel really sore.  Hopefully it only lasts a few days and back to normal.  I&amp;#39;m hoping the Revlind is not the problem because if my current treatment plan of Velcade and Decadron doesn&amp;#39;t work to reduce my numbers I want to try Revlind.  You have been taking it for so long.  Why a moderate rejection now?  Must be something else going on and hopefully not serious.  Take care of yourself and rest your body.  It&amp;#39;s telling you something. Love, Debbie</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default/2933340687027779978'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default/2933340687027779978'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html?showComment=1252591193604#c2933340687027779978' title=''/><author><name>Anonymous</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-6646291372309377456' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/6646291372309377456' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-148955103'/></entry><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-4848331260090855147</id><published>2009-09-10T01:46:03.321-07:00</published><updated>2009-09-10T01:46:03.321-07:00</updated><title type='text'>ewwww i hate that stuff!!!!!!!!!!!!!

Sorry kev yo...</title><content type='html'>ewwww i hate that stuff!!!!!!!!!!!!!&lt;br /&gt;&lt;br /&gt;Sorry kev you gotta take it!!!&lt;br /&gt;&lt;br /&gt;and its 1:43 and im up everynight till 2-3!!!!!!!!!!!!!!!!!&lt;br /&gt;&lt;br /&gt;Crazy but my donor mom said Angelina up all night and sleep all day&lt;br /&gt;&lt;br /&gt;That is pretty much me now.&lt;br /&gt;&lt;br /&gt;Tip</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default/4848331260090855147'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/6646291372309377456/comments/default/4848331260090855147'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html?showComment=1252572363321#c4848331260090855147' title=''/><author><name>Anonymous</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/9-9-9.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-6646291372309377456' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/6646291372309377456' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-264699627'/></entry></feed>
