<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/'><id>tag:blogger.com,1999:blog-5123456984059720316.post3244919589333185930..comments</id><updated>2009-10-07T12:36:28.031-07:00</updated><category term='neuropathy'/><category term='dysphagia'/><category term='Heart Transplant'/><category term='Amyloidosis'/><category term='symptoms'/><category term='hoarseness'/><category term='Bone Marrrow Transplant Amyloidosis'/><category term='Decadron mood change amyloidosis'/><category term='difficulty swallowing'/><category term='death'/><category term='Coldplay'/><category term='Amyloidosis NCTN Kaiser'/><category term='Multiple Myeloma'/><category term='labs Mayo'/><category term='Gertz Amyloidosis Guided Imagery'/><category term='rejection'/><category term='Web 2.0'/><category term='blog'/><category term='kappa light chains'/><category term='ejection fraction'/><category term='Stanford'/><category term='organ donor'/><category term='cassiopeia'/><category term='lucky'/><category term='CTDN'/><category term='address'/><category term='Stem Cell Transplant'/><category term='Revlimid'/><category term='life plan'/><category term='Shelly Garone MD'/><category term='palliative care'/><category term='Mayo'/><category term='Rochester'/><category term='cardiac index'/><category term='Velcade'/><category term='restrictive cardiomyopathy'/><category term='Alison Krauss'/><title type='text'>Comments on Kevin and Barbie -- Our Journey of Hope: On Death</title><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://www.kevinandbarbie.com/feeds/3244919589333185930/comments/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/on-death.html'/><author><name>Kevin Anderson</name><uri>http://www.blogger.com/profile/04634011893927790997</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='24' src='http://4.bp.blogspot.com/_pTTlz7uyVHo/SZ45CE_7wRI/AAAAAAAAAGo/3YM3E4cicwk/S220/IMG_0086.JPG'/></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>8</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>25</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-2646386198140658903</id><published>2009-10-07T10:24:38.885-07:00</published><updated>2009-10-07T10:24:38.885-07:00</updated><title type='text'>Dear Kevin, please put a new, more up-lifting titl...</title><content type='html'>Dear Kevin, please put a new, more up-lifting title on your blog.  Hope you are doing well.&lt;br /&gt;love, Aunt Renie</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/2646386198140658903'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/2646386198140658903'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/on-death.html?showComment=1254936278885#c2646386198140658903' title=''/><author><name>Aunt Renie</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/on-death.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-3244919589333185930' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/3244919589333185930' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-135030130'/></entry><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-7969592333112392056</id><published>2009-10-06T21:28:48.914-07:00</published><updated>2009-10-06T21:28:48.914-07:00</updated><title type='text'>Greetings,  I read your blog from Sept. 22nd to Ri...</title><content type='html'>Greetings,  I read your blog from Sept. 22nd to Rich.  His immediate response was the patient probably had a pulmonary embolus related to his cancer. We really enjoy reading your website.  You are wise, gentle, sweet soul. And a gifted writer.  You should write a book. Happy you are feeling better.&lt;br /&gt;&lt;br /&gt;Elle from Anchorage</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/7969592333112392056'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/7969592333112392056'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/on-death.html?showComment=1254889728914#c7969592333112392056' title=''/><author><name>Anonymous</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/on-death.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-3244919589333185930' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/3244919589333185930' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1110427595'/></entry><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-72486408977661585</id><published>2009-10-06T21:27:33.448-07:00</published><updated>2009-10-06T21:27:33.448-07:00</updated><title type='text'>Greetings,  I read your blog from Sept. 22nd to Ri...</title><content type='html'>Greetings,  I read your blog from Sept. 22nd to Rich.  His immediate response was the patient probably had a pulmonary embolus related to his cancer. We really enjoy reading your website.  You are wise, gentle, sweet soul. And a gifted writer.  You should write a book. Happy you are feeling better.&lt;br /&gt;&lt;br /&gt;Elle from Anchorage</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/72486408977661585'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/72486408977661585'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/on-death.html?showComment=1254889653448#c72486408977661585' title=''/><author><name>Anonymous</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/on-death.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-3244919589333185930' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/3244919589333185930' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1110427595'/></entry><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-7616453176154419664</id><published>2009-09-28T10:24:01.958-07:00</published><updated>2009-09-28T10:24:01.958-07:00</updated><title type='text'>On Saturday, we attended the BMT Annual Banquet fo...</title><content type='html'>On Saturday, we attended the BMT Annual Banquet for patients, their caregivers and medical staff. A grateful patient introduced each of the 5 or 6 doctors of different specialties, with humor and gratefulness.  Each doctor spoke briefly with grace and also gratefulness.   I loved the patient given 18 months to live who is now celebrating 6 years &amp;amp; doing well.  Her doctor said she was a inspiration &amp;amp; her cancer should not have such a Disney-like name.  Then he sang &lt;br /&gt;&amp;#39;SUPERCALIFAGILISTICAMALOI-OI-DOSIS!&lt;br /&gt;It was inspiring to be part of this group, tho the MDs asked for a moment of silence for those who were not there.  We are all touched by the indomitable human spirit, unflagging efforts and modern medical miracles.</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/7616453176154419664'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/7616453176154419664'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/on-death.html?showComment=1254158641958#c7616453176154419664' title=''/><author><name>Aunt Renie</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/on-death.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-3244919589333185930' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/3244919589333185930' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-135030130'/></entry><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-4452647589422261237</id><published>2009-09-27T10:13:05.435-07:00</published><updated>2009-09-27T10:13:05.435-07:00</updated><title type='text'>Again, you expressed your thoughts in a way that t...</title><content type='html'>Again, you expressed your thoughts in a way that transports your feelings.  For me, having someone I love pass away changes everything and it&amp;#39;s a terrible mixture of pain and beauty.  Processing the pain simply takes time, not to eliminate but to learn &amp;quot;where to put it&amp;quot; in my life.  The beauty rises to comfort, enlighten and inspire. I&amp;#39;m also learning the importance of sharing my love and gratitude with others. &lt;br /&gt;I know this, I love you and am happy to be in the same family; I&amp;#39;m glad you&amp;#39;re spending your time loving and enlightening others.</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/4452647589422261237'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/4452647589422261237'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/on-death.html?showComment=1254071585435#c4452647589422261237' title=''/><author><name>Darlene Anderson</name><uri>http://www.blogger.com/profile/07657535921271091590</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='21' height='32' src='http://2.bp.blogspot.com/_TqPqZT6xgGY/SU1T9HfWtmI/AAAAAAAAAAM/EYbVPKtiADg/S220/DSCN1087.JPG'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/on-death.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-3244919589333185930' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/3244919589333185930' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1793720547'/></entry><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-8681655088456025044</id><published>2009-09-24T10:50:04.892-07:00</published><updated>2009-09-24T10:50:04.892-07:00</updated><title type='text'>That is so sad! I am constantly reminded how fragi...</title><content type='html'>That is so sad! I am constantly reminded how fragile life is. I don&amp;#39;t think you are ever prepared to let a loved one go. Although we have the compfort that we can see them again, it is still very difficult.&lt;br /&gt;Rachelle</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/8681655088456025044'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/8681655088456025044'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/on-death.html?showComment=1253814604892#c8681655088456025044' title=''/><author><name>Anonymous</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/on-death.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-3244919589333185930' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/3244919589333185930' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1975709607'/></entry><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-1753680661106971914</id><published>2009-09-23T14:31:51.019-07:00</published><updated>2009-09-23T14:31:51.019-07:00</updated><title type='text'>Dear Kevin, thank you for your thoughtful explorat...</title><content type='html'>Dear Kevin, thank you for your thoughtful exploration of this important issue.  Having been on the receiving side of an M.D. who was very uncomfortable giving me the bad news, I can say it is helpful to have thought it thru.  I am sure you were as compassionate as possible and as such, wish you could do ANYTHING to help.  When there&amp;#39;s really nothing anyone can do except be there.  Platitudes, any comments at all, just interfere with the survivor processing this profound loss.  &lt;br /&gt;You ask which is the best way to go  We saw Anita go unexpectedly in a crash, and saw Art linger waste away with cancer, but had time to say I love you &amp;amp; good-bye.  What I learned from this is that your everyday relationship is what counts in a loss.  To the degree you express love &amp;amp; are at peace with one another, you will have that peace to carry forward.  I also believe the death of a spouse is the most life-changing.  The death of a child impacts your future.  Of a parent, your past.  Losing your spouse impacts your present.  But it&amp;#39;s still a present.&lt;br /&gt;love, Aunt Renie</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/1753680661106971914'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/1753680661106971914'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/on-death.html?showComment=1253741511019#c1753680661106971914' title=''/><author><name>Aunt Renie</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/on-death.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-3244919589333185930' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/3244919589333185930' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-135030130'/></entry><entry><id>tag:blogger.com,1999:blog-5123456984059720316.post-2251943620273913516</id><published>2009-09-23T07:16:42.967-07:00</published><updated>2009-09-23T07:16:42.967-07:00</updated><title type='text'>Um wow, I&amp;#39;m not sure what to even say. I don&amp;#...</title><content type='html'>Um wow, I&amp;#39;m not sure what to even say. I don&amp;#39;t think I could do that, even though I&amp;#39;ve been told my family members have died. Never in person though, always on the phone. I&amp;#39;m not sure that is supposed to be easy to say those things, if it were, then we&amp;#39;ve become too calloused. I hope you have a better day.&lt;br /&gt;&lt;br /&gt;Love,&lt;br /&gt;your niece Brooke</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/2251943620273913516'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/5123456984059720316/3244919589333185930/comments/default/2251943620273913516'/><link rel='alternate' type='text/html' href='http://www.kevinandbarbie.com/2009/09/on-death.html?showComment=1253715402967#c2251943620273913516' title=''/><author><name>Brooke Trogdon</name><uri>http://www.blogger.com/profile/06286713252210911543</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='21' height='32' src='http://4.bp.blogspot.com/_Ocvyxh_Ay04/SaOWrhyIcXI/AAAAAAAAAlc/dFv9JEuhNNI/S220/IMG_5144.jpg'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.kevinandbarbie.com/2009/09/on-death.html' ref='tag:blogger.com,1999:blog-5123456984059720316.post-3244919589333185930' source='http://www.blogger.com/feeds/5123456984059720316/posts/default/3244919589333185930' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-978718884'/></entry></feed>
